And have not had a proper Seder since I was 30 My son doesn’t know Hebrew like I did. I have been isolated for several years: Life. But I observe the High Holidays with prayer and traditions at home. I am not observant in the sense of attending synagogue regularly, keeping kosher. What is your relationship to Judaism? Are you at all observant now? Do you observe holidays, do you have a Seder, will your son have a bar mitzvah? But I think they knew the truth, and I never was. I was frightened I would be kicked out of school.
ACTRESS WITH MS STEM CELL TREATMENT FULL
At Hillel, I hid that I was not a full Jew. But, maybe because my mother did not practice, I never felt Jewish enough. I went through a full conversion, in the mikvah. Because my mother was raised Episcopalian (although her father was Jewish) and my father was Jewish, I decided to convert to Judaism when I was 7 or 8. I attended Hillel day school. I had a bat mitzvah, and I took a trip to Israel the spring prior to my bat mitzvah. Growing up in Michigan, I very much had a Jewish upbringing. I have lived a few lifetimes in my years. Is there anything from your Jewish background, your studies at Hillel, that helped you deal with MS? I want to feel more confident than I do now. I work more now than I did when I was a regular working actress, but it’s a very different animal. I think if I could control my speech issues, I would consider acting again. I’m the chief creative officer of Guide Beauty and I am passionate about those things and, of course, my advocacy work in the disability community. For this reason, sometimes it’s easier for me to stay close to home. And speaking of weather: In the sun, I really struggle. The sunlight hits me hard, causing disorientation, weakness, and proprioception (the sense of self-movement and body position) issues.
It’s a mysterious disease in so many ways. I see how, for those on the outside, MS can feel so confounding. And, of course, I was diagnosed with MS fairly late, despite having had symptoms for years. The doctors suspect it’s from some damage in my deep gray matter from years-long flares. I still have a pattern, or a real impasse with my left leg and speech blocks. The stem cell treatment did stop the progression, but it didn’t reverse the havoc that had already been wreaked on my system by MS.
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